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Diagnosis and Management of Interstitial Cystitis/Painful Bladder Syndrome

(Published May 2008)

Resources for Patients

Support for IC/PBS: The Interstitial Cystitis Association (ICA)

  • Founded by a physician with IC/PBS.
  • Goals: raise awareness about the condition, support patients with IC/PBS and their families, provide information about IC/PBS, raise funds for IC/PBS-related research, and work with Congress and the National Institutes of Health to ensure that funds are dedicated to study IC/PBS.
  • Offers one-on-one support.
  • Maintains an informational Web site, a registry of health care professionals with experience in IC/PBS diagnosis and management, and produces books, newsletters, and fact sheets about IC/PBS.
  • Contact through www.ichelp.org or (800) HELP ICA

Support for IC/PBS-Associated Diseases

  • IC/PBS is associated with a number of diseases, such as irritable bowel syndrome, fibromyalgia, and vulvodynia.
  • Patients who have IC/PBS and associated diseases may find it helpful to contact organizations that can provide disease-specific education and support.

Organizations focused on IC/PBS-associated conditions