Resources for Patients

Support for IC/PBS: The Interstitial Cystitis Association (ICA)

• Founded by a physician with IC/PBS.
• Goals: raise awareness about the condition, support patients with IC/PBS and their families, provide information about IC/PBS, raise funds for IC/PBS-related research, and work with Congress and the National Institutes of Health to ensure that funds are dedicated to study IC/PBS.
• Offers one-on-one support.
• Maintains an informational Web site, a registry of health care professionals with experience in IC/PBS diagnosis and management, and produces books, newsletters, and fact sheets about IC/PBS.
• Contact through www.ichelp.org or (800) HELP ICA

Support for IC/PBS-Associated Diseases

• IC/PBS is associated with a number of diseases, such as irritable bowel syndrome, fibromyalgia, and vulvodynia.
• Patients who have IC/PBS and associated diseases may find it helpful to contact organizations that can provide disease-specific education and support.